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About Us

It all started in the spring of 2008, family and friends came together for a walk to support a little boy with EB named Carson.
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What is EB?

Epidermolysis Bullosa (EB) is a rare genetic skin disease and one of the most debilitating conditions on the face of the planet. At least we think so.
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Annual Walk for EB

Living with EB is extremely challening, but we firmly believe that the path to a cure begins with HOPE…so we continue walking.
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You Can Make a Difference

Be a ray of Hope on the path to a cure and make a difference in the lives of thos living with EB and their families.
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Donate Today

 Your Gift Matters! Support the EB Hope Foundation and provide a positive impact on the EB community.