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Thank you for supporting our Walk for EB

The Walk for EB started in 2008 to rally in support of David and Kristy Kissell and their young son Carson, who was born with Epiderdermolysis Bullosa (EB).

The Walk for EB helped raise funds and awareness for the EB Hope Foundation. Epidermolysis Bullosa (EB) is a rare, genetic skin disease characterized by extremely fragile skin that blisters from minor friction or trauma. There is no cure for EB. Funds raised are used to support organizations that research, care and treat for EB.

Since the Covid-19 pandemic, the event has been held virtually. We appreciate everyone’s long-time support. And remember, there’s always time to Walk for EB!

There’s Always Time to Walk for EB!

1. Make a Donation:
Donate online below, or make checks payable to EB Hope Foundation and mail to:

EB Hope Foundation
P.O. Box 810
Miamitown, OH 45041

Secure, Online Donations Accepted through PayPal

 

2. Go on a Walk for EB
Walk any day and for any distance! Post a video or a picture showing your support of the EB Hope Foundation!

3. Tag a Friend on Facebook
Post a video on Facebook of your family on a Walk for EB, and then tag a friend to do the same. Be sure to add the hash tag #WalkForEB ton your post. Let’s flood Facebook with support for EB.

4. Kolbe’s Toddler Trot
Have your toddler trot 40 yards and time them! Post a video or picture of their trot with their time! Kids of all ages welcome!

5. Nate’s Ninja Challenge
Set up a ninja course and have your kiddo (any age) tackle the challenge. Check out course ideas using stuff around your house on the Walk for EB Facebook page. Post a video or picture of your course!  Mom and Dad welcome too!

 

Amazing Supporting on the Path to a Cure for EB

In its 14-year history, the Walk for EB has raised a total of over $300,000 to help financially support organizations committed to research and the care of EB patients and their families. In addition, the Walk for EB has helped to spread great awareness about this widely unknown, debilitating skin disease.

We believe awareness about EB will change lives … awareness extends the path of people who can support efforts to help EB families and fund research needed for a cure.

Thank you for your support!

 

Our Inspirations!

Carson and Kolbe Kissell, the sons of Kristy & David, were born with a rare genetic skin disease called Epidermolysis Bullosa (EB). Inspired by these little boys so full of life, family and friends started the Walk for EB in 2008 with the hopes of making a positive impact on awareness, efforts to find a cure, and support for EB families!

History of the Walk for EB

In its 14 year history, the Walk for EB has raised over $300,000 to benefit EB organizations. On average, the walk draws around 400 to 500 people each year.

May 2021 (virtual) — coming soon! 

May 2020 (virtual) – $36,000 raised

May 2019 — $35,000 raised

May 2018 — $37,000 raised

May 2017 — $40,000 raised

May 2016 — $30,000 raised

May 2015 — $27,000 raised

May 2014 — $19,500 raised

May 2013 — $19,000 raised

May 2012 — $23,000 raised

May 2011 — $18,000 raised

May 2010 — $15,000 raised

May 2009 — $22,000 raised

May 2008 — Inaugural Walk for EB, $21,000 raised

Highlights from past years…