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The 10th Annual Walk for EB Was A Huge Success!!!

Hundreds came out on a beautiful day this past May for the 10th annual Walk for EB. This year’s walk was another record year for donations with over $40,000 raised!

In its 10-year history, the Walk for EB has raised a total of over $200,000 to help financially support organizations committed to research and the care of EB patients and their families. In addition, the Walk for EB has helped to spread great awareness about this relatively unknown, debilitating skin disease. Awareness is so very important…We believe awareness about EB will change lives…awareness extends the path of people who can support efforts to help EB families and fund research needed for a cure.

Thank you to everyone who supported this historic year for the Walk for EB!

Check out the coverage of this year’s walk by a local news station.

SAVE-THE-DATE

2018 Walk for EB
Saturday, May 12, 2018
Miami Whitewater Forest

ETB Music & Fine Arts Raises Funds for Walk for EB!

In conjunction with this year’s Walk for EB, the ETB Music & Fine Arts Center raised over $1,700 during its spring ensemble performance to benefit the EB Hope Foundation. We are so thankful for the wonderful partnership with Emily Beck and her talented team at ETB! Thank you for the amazing support!

Business Partners at This Year’s Walk for EB!

This year’s Business Partners made a huge difference on the path to a cure with over $8,000 raised from this portion of the walk! Thank you to the many businesses that supported this year’s Walk for EB!

 

Our Inspirations!

Carson and Kolbe Kissell, the sons of Kristy & David, were born with a rare genetic skin disease called Epidermolysis Bullosa (EB). Inspired by these little boys so full of life, family and friends started the Walk for EB in 2008 with the hopes of making a positive impact on awareness, efforts to find a cure, and support for EB families!

History of the Walk for EB

In its ten year history, the Walk for EB has raised over $200,000 to benefit EB organizations. On average, the walk draws around 400 to 500 people each year.

May 2017 — $40,000 raised.

May 2016 — $30,000 raised.

May 2015 — $27,000 raised.

May 2014 — $19,500 raised.

May 2013 — $19,000 raised.

May 2012 — $23,000 raised.

May 2011 — $18,000 raised.

May 2010 — $15,000 raised.

May 2009 — $22,000 raised.

May 2008 —The first ever Walk for EB was held with a total of $21,000 raised.

Highlights from past years…